I’ll keep this at the top until after the walk!
MS Walk
March 20th, 2009 · No Comments
![[Bloglines]](http://msgirl.org/wp-content/plugins/bookmarkify/bloglines.png)
![[del.icio.us]](http://msgirl.org/wp-content/plugins/bookmarkify/delicious.png)
![[Digg]](http://msgirl.org/wp-content/plugins/bookmarkify/digg.png)
![[Google]](http://msgirl.org/wp-content/plugins/bookmarkify/google.png)
![[Reddit]](http://msgirl.org/wp-content/plugins/bookmarkify/reddit.png)
![[StumbleUpon]](http://msgirl.org/wp-content/plugins/bookmarkify/stumbleupon.png)
![[Technorati]](http://msgirl.org/wp-content/plugins/bookmarkify/technorati.png)
![[Windows Live]](http://msgirl.org/wp-content/plugins/bookmarkify/windowslive.png)
![[Yahoo!]](http://msgirl.org/wp-content/plugins/bookmarkify/yahoo.png)
![[Email]](http://msgirl.org/wp-content/plugins/bookmarkify/email.png)
→ No CommentsTags: Blog
No bone marrow for you!
March 20th, 2009 · No Comments
My employer is sponsoring a bone marrow donor drive and I would totally *LOVE* to donate. I got all the paper work and was ready to go until I start reading the details. It specifically asks you if you have an autoimmune disorder like Multiple Sclerosis. That is never a good sign when they ask you specifically…
So I looked on the website and it is indeed true, having Multiple Sclerosis prevents you from donating bone marrow.
Yeah well, my bone marrow doesn’t like you either.
→ No CommentsTags: Newly Diagnosed
Seattle MS Walk
March 19th, 2009 · 3 Comments
We are just a few weeks for my first MS walk. April 5 is the big day for those of us in Seattle. I hate to pimp myself for donations but I figure I am allowed once a in while. For those of you unable to donate, please ignore my spam.
To my family, friends and readers, I know the economy sucks but anything you can do would be great. To my dad, I know you are paying for a wedding so you are off the hook! I will personally match the donations up 200 dollars.
For more information, please see my donations website. It is completely anonymous so no names will be published on either my site or the National MS Society site. If you would you like your name on here, let me know and I’ll put it in huge orange letters. 
→ 3 CommentsTags: Activism
Donating blood
March 18th, 2009 · 2 Comments
I thought I had found a good reason to have Multiple Sclerosis. Can’t donate blood! I mean, every time I get email saying donate blood, attached is a guilt trip. So boy was I happy when I thought I wouldn’t be able to donate.
Well, a coworker has cancer and apparently needs some blood. I decided that in order to relieve myself completely of the donate blood guilt trip that I should really verify it. So I emailed our local blood bank with the list of my medications.
I have an appointment in April to donate blood. I guess the guilt trip still stands even with Multiple Sclerosis. Sigh. 
→ 2 CommentsTags: Newly Diagnosed
Whats life without drama?
March 17th, 2009 · No Comments
You might be wondering why I am showing you a blurry picture of an alien. Actually, it’s my uterus with an IUD (or as the ultrasound tech called it “the anti-baby”. You can see that weird tube thing in the middle top of the picture. Thats the IUD.
Because my life is never boring… my ovaries decided to start acting up. I was having dull annoying pain all day which included a missed period. It turns out I have an ovarian cyst. The doc said the cyst already burst and the contains of the cyst is what is causing the pain. I am still having the dull ache which is now combined with the lovely no-longer-missing period. Yay.
The ultrasound was hella cool though. Tom said my ovaries look like bubble tea because they are full of little.. bubbles (eggs). I am glad I keep him around. He always makes doctors appointments much more interesting.
Never a dull moment around here.
→ No CommentsTags: Doctor Visits · Nutrition
Jury Duty
March 17th, 2009 · No Comments
I had jury duty the last two days. I was thrilled and wanted nothing more than to be on a trial. The way it works is, your name gets assigned to a group with a number. The first 12 people in the group are in the jury until otherwise. Today I made the cut at 12. I was *thrilled*. It was a civil case, aka lawsuit involving a motor vehicle accident. The defense admitted to guilt but they didn’t admit to any damages from the accident. That is why we were there.
Anyway, the first question was – How did we feel when we heard what this case was about? Being the observant person that I am, I noticed the injured party was not in the court room. I said I was curious about what happened and how injured they were. Only a couple others shared this view with me though. I thought that was very odd.
I believe my jury experience was essentially over at that point. 80% of the others thought most lawsuits were a waste of time/money. They thought they were stupid. They thought they needed to cap the rewards. And then someone brought up the McDonald’s case. Multiple people said that it was frivolous and that the women needed to talk some personal responsibility.
I am all for personal responsibility but McDonald’s needed to take some too. The coffee was 180-190 degrees. The woman had third degree burns from the coffee. I of course said something about this. I guess that was a mistake also.
Anyway, I was the first person tossed off the jury. There was another person that was kept on the jury and he wasn’t able to complete a sentence. He also looked like he was straight out of jail which is possible because he raised his hand when he said he didn’t like the justice system.
I think I would have been very fair. I am a pretty factual based person. I can see both sides to it.
Oh well, I fail. Fired from jury duty.
→ No CommentsTags: Blog · Travel
The face of MS
March 17th, 2009 · 4 Comments
Well, in case you missed it. Montel was on Oprah today. He was crying his eyes out. I can’t believe all the tears that went on. He clearly is deeply impacted by MS. He says that his shot everyday is just more reminders that he has MS. A sad depressed reminder. Anyway, on and on he went. The tears kept flowing. He was depressing me!
And I can not identify with him at all. When he called himself the face of MS, I laughed. Not my MS! Maybe its someone elses MS. Is he your face of MS?
Oh the drama. I mean, it is amazing that Oprah has done an entire show on MS (Well, we will ignore the part about Magic Johnson and his HIV..). But is this really the face of MS we would like to show?
I mean, I am thrilled to get the airtime…..
→ 4 CommentsTags: Activism
I missed a day.
March 7th, 2009 · 3 Comments
For the first time ever, I completely missed a dose. You see, I don’t travel well on short notice. I need to plan. I think if I had two weeks to plan I would be fine but I had 24 hours. I caused me to panic and freak out… and forget my copaxone.
And I loved every moment of it. I was pissed to have to start taking it again but it did. I can probably make up the missed dose and I might but in the mean time… I’ll keep being happy about missing a dose.
I scheduled a follow-up with my favorite doctor. It has almost been a year since my diagnose and I know I am almost due for a MRI. I am nervous about another relapse which will probably cause another relapse.
→ 3 CommentsTags: Doctor Visits · Newly Diagnosed
MS Awareness Week
March 2nd, 2009 · 1 Comment
This week is MS Awareness Week so don’t forget to wear your orange on Tuesday!
→ 1 CommentTags: Newly Diagnosed
Follow-up Doc Appointment
February 21st, 2009 · 7 Comments
I met with the NP this week for all my results and it was quite interesting. My total cholesterol was 159 which I thought was excellent considering I was in the 200ish range 5 years ago. She said she likes it a little higher because cholesterol protects the brain and immune system. Yeah, I’ll work on raising that right now – eggs and bacon anyone?
An for the fun part, the food allergy tests came back saying I was highly allergic to wheat, dairy, gluten, rye, lima beans (YAY!!!), eggs, egg yolks and almonds. So basically, I can’t eat anymore. I told her to pick one of those to start with and she said wheat. I am also going to take the blood tests for Celiac disease and see what we find there.
In other news, I have been busy planning a wedding. I are getting married in July. I have a site for the ceremony and reception. I have a photographer. I have a beautiful wedding dress that will be here on June 10th. I have flowers. And today we are going to the cake tasting! Sweet!