Planning The Unpredictable

I saw this come through the google: Veterans’ MS study awaits Bush sign-off The Veterans Benefits Improvement Act of 2008, now awaiting President Bush’s signature, contains a provision to determine whether veterans of the Persian Gulf War in 1991 and of post-9/11 wars are at increased risk for multiple sclerosis. Senate Bill 3023 passed the [...]

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I have been waiting for this debate for a while. Tom and I have planned a dinner of Indian food and I have the debate recording in HD. I hope McCain doesn’t disappoint all American’s by being too chicken shit to show up. If he ditches the American People… at least we will have Indian [...]

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Last week, I forgot my shot twice. I don’t think its so much forgot because both nights I said I need to do my shot. I think its more that I don’t want to do my shot. I do not like the site reactions. Yeah, they aren’t horrible but they aren’t fun either. Tom and [...]

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My sharps container was full so we set out on Saturday to find out what to do with this thing. Interestingly enough, the waste management place is 5 miles away and it was free! I haven’t been to the dump so I was a kid so it was quite a smelly experience. I also got [...]

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Tonight was the fancy hotel night. I must say I was disappointed in the food but the view was nice on the 4th floor overlooking Elliott Bay. It would have been great if it wasn’t raining… None the less. We had a good time. It was highly educational. The director of the MS clinic at [...]

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I had my follow up appointment with the Neurologist today. He went over the the labs which were normal. He also went over the MRI and just said there were 3-4 lesions on the spine. We went over meds and all that stuff. Pretty boring appointment which is the best kind to have. He said [...]

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I got a letter in the mail from Copaxone advertising a MS program at the Edgewater Hotel on the water front in Seattle. It’s a pretty snazzy hotel and they are paying for parking. Call me shocked. Do I need to bring my “I have MS” badge so I get the free parking? Anyway, Tom [...]

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My friend (well technically, my mothers friend) Linda said that for the first three months of her diagnosis she set out to learn everything she could on Multiple Sclerosis. She went to meetings with the local MS chapter to hear about the latest research, she read anything she could find and do what a good [...]

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I can’t say it was MS that took away my balance but I have a strong suspension that the 1.5cm lesion is my balance. I would like that back please. Tom and I went on a hike this weekend to Twin Falls in the Cascade’s of Washington State. It was very pretty hike but I [...]

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I asked the lab about how I can get my results. They said the only way is to go through the doctor. So I called the doctor today and I got the very weird medical assistant. He’s a nice guy but very very weird. There were a couple labs that were a little off. It [...]

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