Planning The Unpredictable » Newly Diagnosed

Words

nina — Fri, 12 Jun 2009 06:52:57 +0000

What do you do when people always comment (think its funny!) on your misplaced/slurred/screwed up words?

I am getting tired of some coworkers always commenting on it. Today I made a comment to him about how I had holes in my head and to be nice to me but I have said that before…. I don’t think he connects the two.

This week

nina — Fri, 22 May 2009 04:03:12 +0000

last year was a crazy week. Diagnosed with MS and put on a 3 day dose of IV steroids during Memorial day weekend! The big MRI is Saturday at 930am. Sweet.

No bone marrow for you!

nina — Sat, 21 Mar 2009 05:39:39 +0000

My employer is sponsoring a bone marrow donor drive and I would totally *LOVE* to donate. I got all the paper work and was ready to go until I start reading the details. It specifically asks you if you have an autoimmune disorder like Multiple Sclerosis. That is never a good sign when they ask you specifically…

So I looked on the website and it is indeed true, having Multiple Sclerosis prevents you from donating bone marrow.

Yeah well, my bone marrow doesn’t like you either.

Donating blood

nina — Wed, 18 Mar 2009 21:30:31 +0000

I thought I had found a good reason to have Multiple Sclerosis. Can’t donate blood! I mean, every time I get email saying donate blood, attached is a guilt trip. So boy was I happy when I thought I wouldn’t be able to donate.

Well, a coworker has cancer and apparently needs some blood. I decided that in order to relieve myself completely of the donate blood guilt trip that I should really verify it. So I emailed our local blood bank with the list of my medications.

I have an appointment in April to donate blood. I guess the guilt trip still stands even with Multiple Sclerosis. Sigh.

I missed a day.

nina — Sun, 08 Mar 2009 07:05:58 +0000

For the first time ever, I completely missed a dose. You see, I don’t travel well on short notice. I need to plan. I think if I had two weeks to plan I would be fine but I had 24 hours. I caused me to panic and freak out… and forget my copaxone.

And I loved every moment of it. I was pissed to have to start taking it again but it did. I can probably make up the missed dose and I might but in the mean time… I’ll keep being happy about missing a dose.

I scheduled a follow-up with my favorite doctor. It has almost been a year since my diagnose and I know I am almost due for a MRI. I am nervous about another relapse which will probably cause another relapse.