Planning The Unpredictable

What do you do when people always comment (think its funny!) on your misplaced/slurred/screwed up words? I am getting tired of some coworkers always commenting on it. Today I made a comment to him about how I had holes in my head and to be nice to me but I have said that before…. I [...]

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last year was a crazy week. Diagnosed with MS and put on a 3 day dose of IV steroids during Memorial day weekend! The big MRI is Saturday at 930am. Sweet.

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My employer is sponsoring a bone marrow donor drive and I would totally *LOVE* to donate. I got all the paper work and was ready to go until I start reading the details. It specifically asks you if you have an autoimmune disorder like Multiple Sclerosis. That is never a good sign when they ask [...]

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I thought I had found a good reason to have Multiple Sclerosis. Can’t donate blood! I mean, every time I get email saying donate blood, attached is a guilt trip. So boy was I happy when I thought I wouldn’t be able to donate. Well, a coworker has cancer and apparently needs some blood. I [...]

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For the first time ever, I completely missed a dose. You see, I don’t travel well on short notice. I need to plan. I think if I had two weeks to plan I would be fine but I had 24 hours. I caused me to panic and freak out… and forget my copaxone. And I [...]

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This week is MS Awareness Week so don’t forget to wear your orange on Tuesday!

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The AAN found that breast feeding reduces relapse rate in women with MS! Among the multiple sclerosis patients, the researchers found that the rate of postpartum relapse was significantly lower among those who breast-fed exclusively for at least two months compared to those who did not breast-feed or began regular supplemental feedings within two months [...]

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I am onto my third cold of the ‘flu and cold season’ which is about 2.5 colds more than a usual year. While my neuro said Copaxone has no effect on colds/viruses, I seriously doubt him. Nothing exciting to report… I should have my test results from the Naturopath on Monday. Exciting. All I can [...]

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Let me see… first off, I am very western medicine focused. Since Seattle has a very large Natural Medicine School, we tended to get a lot of Bastyr graduates. I am very leary of their training. I am sure they are good but I went to one once and she said my kidneys were poor [...]

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When the lovely doctor asked me what my daily MS symptoms are I said word finding was at the top of the list. She said that I should consider a Neuropsych test in the next year or so. The purpose is to get a baseline of cognitive abilities now. I hadn’t really heard of such [...]

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