Planning The Unpredictable » Activism

Woman with MS wins right to die

nina — Thu, 30 Jul 2009 17:53:43 +0000

http://news.bbc.co.uk/2/hi/health/8176713.stm

There is a video of her on the website so be sure to check it out.

“The key to living well with MS is getting the right care and support from the point of diagnosis, including palliative care when it’s needed.”

Well, I completely agree with that.

Health care plan

nina — Wed, 29 Jul 2009 17:52:34 +0000

I admit to not being as informed about the health care plan as I should be but I found this interview to be fascinating.

http://www.pbs.org/moyers/journal/07102009/watch2.html

It’s about 25 minutes are so.

In other news… I hope the Seattle folks are surviving the heat. It was 94 degrees inside my condo last night.

MS ShmMS – I am going to climb Everest

nina — Mon, 01 Jun 2009 21:58:34 +0000

Just climbing Everest is insane but add in MS? Crazy!!!!

http://www.jsonline.com/features/health/45924582.html

Ten years after doctors presented Lori Schneider with a hellish warning to prepare for life in a wheelchair, she ascended to the place on Earth closest to heaven.

Schneider stepped to the summit of Mount Everest, in sunshine and bitter cold, on Saturday morning, and became the first woman with multiple sclerosis to reach the roof of the world. Standing at 29,035 feet, the 52-year-old adventurer unfurled a banner for World MS Day, and then called her father, in Janesville.

“She said, ‘I’m here Dad, I’m on the summit, I made it,’ ” Neal Schneider recounted. “She was very, very happy, as you can imagine.”

Bridal Store kicks woman with MS out!

nina — Wed, 20 May 2009 05:18:55 +0000

Holy crap. A summary is on The Consumerist. The full story with video is on the local media here.

Ooo, you nasty! With your service animal! Get out of here! That’s the new informal slogan of Isis Bridal & Formal in Dallas after news broke that they kicked out a 62-year-old grandmother with multiple sclerosis, because they were worried her service dog would get service dog cooties all over the dresses.

The company has since indirectly apologized to the woman via a letter to the news station that broke the story (after first refusing to comment on the allegation at all), In the letter, the store’s owner assures the public that they welcome service animals “when they are leashed and well controlled so that our pretty wedding dresses and accessories are kept in good condition for customers.” There’s no mention of whether the woman’s dog was leashed or not, although the idea of a rambunctious service dog who doesn’t mind is just funny.

What the hell? No one even BUYS the sample dresses. When you order a dress, it takes months to even get it in. I ordered mine on February 14th and it won’t be here for another 3 weeks! Second, it would be a very odd day if I didn’t see a dog at Nordstroms’ or well, most stores in Seattle. It’s a dog, not a 2 year old. Dogs can be calm. Anyway, Isis Bridal sucks.

MS Walk!

nina — Mon, 06 Apr 2009 03:30:41 +0000

Here are a few shots from todays MS Walk:

I had to wear a walking boot but still managed to finished the 4 mile walk! I think it took about 1h30m which isn’t bad for a broken MS Girl.