Planning The Unpredictable

6 responses so far ↓

• 1 Patti // Dec 26, 2008 at 12:24 pm

  WOW! What an absolutely gorgeous ring. Congratulations to you both and tell your Mom I said hi please.

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  nina reply on December 26th, 2008 4:45 pm

  Thanks! I’ll tell her hi. She should be back from visiting my brother today.

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• 2 Lisa Emrich // Dec 26, 2008 at 12:59 pm

  Congrats Nina!!!

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  nina reply on December 26th, 2008 4:45 pm

  Thanks Lisa! Very appreciated.

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• 3 Seattle Programmer // Dec 26, 2008 at 1:51 pm

  Hey,

  Congrats! Wish you success and joy for rest of the life to come.

  Also, I wanted to let you know another thing. My wife also works for software field in Seattle and right around your age. Your report is so typical of hers too, probably taken at the same place (GHC probably). Her symptoms were same as yours. Her first stroke also was Optic Neuritis. I wanted to know two things, if fine by you.

  (i) Did you have (or had) any other symptoms other than optic neuritis?
  (ii) If not, did you choose Copaxone because it was recommended? I hear people wait for multiple symptoms before starting the therapies. Is it the norm?

  Thanks

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  nina reply on December 26th, 2008 5:00 pm

  Welcome back

  At the time of the optic neuritis, I had no other symptoms. The MRI did show current activity in more than one location though. I had the optic nerve light up and also some part of my head.

  As for before optic neuritis, I had some tingly complaints which the doctor kind of blew off. About 3-4 years ago, I had tingly legs/feet on both sides. About 1-2 years ago, I had tingly hands which sucks when using the keyboard. Neither were a big deal, just annoying.

  The cases before were what put me from the possible MS to the lets just call it MS group. And the MRI showing prior and current activity.

  As for the copaxone, research does suggest that starting treatment sooner than later might postpone it being moved into the completely MS group. It might even stop the progression to MS.

  Copaxone side effects are easy to deal with. Not fun but easy. There are no systemic side effects like flu (the others drugs have that one). The site reactions suck but much easier to deal with in a short term than the possibilities of deal with MS.

  The long term research does suggest it is a safe medication to use. I am not sure if you would like children but you should remain off all of the medication during pregnancy however it does appear safe for breastfeeding.

  Since high tech is usually nice to employees, I imagine your insurance is decent. The medication is about 2,100/mo but my copay is only 20/mo. If the cost and pain from injections are worth it, I would do it in a second.

  Good luck on the decision.

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