Spinal MRI reports are harder to read

July 1st, 2008 · 8 Comments

I received my spinal MRI report and it is a lot harder to read than the brain MRI. It looks like two doctors looked at the report but didn’t quite agree on the results. One report says there are three lesions and the other says four. I don’t think it matters too much because one is too many but I was hoping for just two lesions. That means I have at least 7 of these stupid little things in my body. That seriously pisses me off. Argh.

The lovely doctors were nice enough to let me know that my neck is degrading or something too. It’s like a twoffer. Lesions and screwed up neck!

Anyway, the kids have been a lot of fun. They of course have tons of energy but fun none the less. Tonight I made their daddy buy them new shoes at Nordstrom’s. That was quite the experience. Tomorrow we are going to get doughnuts at Top Pot, head to the Museum of Flight and then THE GREAT WOLF LODGE! It’s going to be tons of fun! I will just ignore those silly lesions.

I got interviewed today by a writer doing an article for the NMSS. She is going to email me my quotes which I am sure sound really intelligent with lots of uhms and stuffs.

See everyone in a couple days.

Tags: MRI

8 responses so far ↓

1 Nadja Tizer // Jul 2, 2008 at 10:16 am

Yeah, it sucks about the spinal lesions. I am glad you are having fun though. I say, live today, worry tomorrow if you must worry.

[Reply]
2 Ruby // Oct 17, 2008 at 5:12 pm

can u tell me how you were definitively diagnosed. were you dx via the McDonald Criteria, Posner or the Lublin. I ask as there are so many misdiagnosed. Thank you very much.

[Reply]
nina reply on October 17th, 2008 11:02 pm
McDonald most likely. I made it pretty easy for the doctors. I got a case of ON with two previous relapses which were documented but not linked to MS at the time. I saw a Neuro-Optho dude and he diagnosed me. I got a second opinion from a Neuro only dude. Both were part of a local MS clinic and specialize in it. The radiologist agreed with the diagnoses also. Sadly, this is MS.

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Ruby reply on October 19th, 2008 8:42 pm
Poor dear, they haveyou sicked in too. Dudes don’t dx MS, good doctors do and not neuro optho’s wither nor radiologists. You need what the criteria indicates on Mcdonald Criteria. anythins less, you are a sucker and they will suck the life out of you. What about an LP? SEEMS like so much you don’t know!! pretty easy for doctors.seem like you want the MS. Do you know why they dx you? no you don’t, dear dude lady.

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3 Ruby // Oct 19, 2008 at 8:45 pm

GO ON NMSS site and search ‘diganosing MS’ and you will see the criteria. having these ‘dudes’ diagnose you, I’m laughing. they sucked me in for 8 years, using meds that made me sick as hell. I had ON too, big deal, that can be from anything. and lesions on the brain can be a multitude of things!!! Ask the brilliant radiologist and dudes why they dx yoyu with ms. Poor girl

[Reply]
nina reply on October 19th, 2008 9:03 pm
It says:

* Find evidence of damage in at least two separate areas of the central nervous system
(CNS), which includes the brain, spinal cord and optic nerves AND

- Lesions were found on my brain and spinal cord. There are 4 to 5 in each location.

* Find evidence that the damage occurred at least one month apart AND

- The MRI indicted enhancing and non-enhancing lesions which suggest they were at least a month apart.

* Rule out all other possible diagnoses

And finally, the second Neuro ran through all the blood tests and ruled out a bunch of other options. I don’t have RA. My b12 level was fine. All my other blood tests are normal except for vitamin D. I have not been exposed to any heavy metals. We have a very low risk of lyme disease in Washington state.

I agree that there are definitely people that don’t have MS that are told they do. No doubt. And I certainly don’t want MS however I do trust the doctors for one simple reason… I have researched everything they have said on my own. I have all the MRI’s and MRi reports. I have all my blood results. I read the latest research papers. I spent hours looking over my MRI.

I can understand where you are coming from. I see people on MS forums just wishing they had MS but I am not one of them. I was living a healthy normal life at 29 when this happened. I never went looking for an illness like others do. I just went blind one day and didn’t even thought about the cause until the eye doctor said MS and sent me to Neuro.

The ON was my third relapse. I had two previous relapses that involved tingly legs and tingly arms. It matched up with the MRI and the time lines of the relapses did also. They both latest 6-8 weeks and then went away, no problems again. I had IV steroids over my case of ON and responded beautifully to them. I was able to see less than a week after my final dose.

[Reply]
4 Ruby // Oct 20, 2008 at 9:56 am

McDonald, most likely? Most people don’t even know how or why they are diagnosed. So now DUDES do diagnoses. ??? Pretty cool. follow the yellow brick road too. You’re not in Kansas anymore, Dorothy. The MS machine marches on. Tingles are not relapses. Everyone has tingles. Geez. I’m coming from a place where misdiagnoses abound and people just accept and people who have MS spend hours on sites like this who could never if they had MS. when u have MS you are really SICK. GOOD LUCK

[Reply]
nina reply on October 20th, 2008 10:05 am
Everyone has numb feet/legs/arms for weeks on a time? That is news to me. I didn’t have a problem before.

I am not sure what your purpose is but you should find one. This isn’t your calling.

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