Planning The Unpredictable

LIVING with Multiple Sclerosis

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Words

June 11th, 2009 · No Comments

What do you do when people always comment (think its funny!) on your misplaced/slurred/screwed up words?

I am getting tired of some coworkers always commenting on it. Today I made a comment to him about how I had holes in my head and to be nice to me but I have said that before…. I don’t think he connects the two.

→ No CommentsTags: Newly Diagnosed

Bad night

June 2nd, 2009 · 5 Comments

Well, I gave myself a shot at about 11:30PM and was in an insane amount of pain until about 2:30AM when I finally fell asleep. I called Shared Solutions at about 2AM and they were completely useless. They just told me how to do injections which I am not sure how that is even remotely useful at this point. None the less… they said they can’t help with anything else and to call my doctor.

Basically, I was having throbbing pain down my leg to my foot. I couldn’t get comfortable at all and my whole hip area was swollen. I haven’t experienced anything like that before. It seriously sucked.

I put some lidocaine on the bump and ice but still no good. I finally overdosed on advil and fell asleep. Today, the bump is red and painful but otherwise not nearly as bad.

Argh! I am so tired today.

Has anyone else had a similar reaction before?

→ 5 CommentsTags: Blog

MS ShmMS - I am going to climb Everest

June 1st, 2009 · No Comments

Just climbing Everest is insane but add in MS? Crazy!!!!

http://www.jsonline.com/features/health/45924582.html

Ten years after doctors presented Lori Schneider with a hellish warning to prepare for life in a wheelchair, she ascended to the place on Earth closest to heaven.

Schneider stepped to the summit of Mount Everest, in sunshine and bitter cold, on Saturday morning, and became the first woman with multiple sclerosis to reach the roof of the world. Standing at 29,035 feet, the 52-year-old adventurer unfurled a banner for World MS Day, and then called her father, in Janesville.

“She said, ‘I’m here Dad, I’m on the summit, I made it,’ ” Neal Schneider recounted. “She was very, very happy, as you can imagine.”

→ No CommentsTags: Activism · Insurance

MRI results

May 28th, 2009 · 1 Comment

Ok so, I wanted the MRI CD/results… because it’s my brain. So, I filled out the little form and asked for it to be sent to me. The said if would be 13 dollars unless it was sent to a doctor then it’s free. WTF??!? I have to pay 13 bucks for MY OWN MRI but it’s free for a doctor? Are you serious?

GEEZ!

Oh, and don’t even get me started on the drama involved in my earring. Yes, I have had probably 6 MRIs with this earring and it’s still a big deal. NEVER has it been a problem even in the 3.0 Telsa. The lady thought my ear was going to fly off. Cool image but no… it’s still attached.

→ 1 CommentTags: MRI

How cool is this?

May 28th, 2009 · 2 Comments

So, I had my MRI on a 3.0 Telsa which is that new powerful MRI dealiebob. I have no idea what this is but it’s freakin cool! Click for the full size image.

pathways0001

→ 2 CommentsTags: MRI

MRI Results!!!!

May 27th, 2009 · 3 Comments

GOOD AND STABLE!!!!

YAY!!!!!!!!!!!!! GO GO COPAXONE GO!

→ 3 CommentsTags: Doctor Visits

This week

May 21st, 2009 · 1 Comment

last year was a crazy week. Diagnosed with MS and put on a 3 day dose of IV steroids during Memorial day weekend! The big MRI is Saturday at 930am. Sweet.

→ 1 CommentTags: Newly Diagnosed

Carnival of MS Bloggers

May 21st, 2009 · No Comments

Be sure to check out this edition of Carnival of MS Bloggers. Lisa included my jelly fish pictures! Yay! I love them.

→ No CommentsTags: Blog

Bridal Store kicks woman with MS out!

May 19th, 2009 · No Comments

Holy crap. A summary is on The Consumerist. The full story with video is on the local media here.

Ooo, you nasty! With your service animal! Get out of here! That’s the new informal slogan of Isis Bridal & Formal in Dallas after news broke that they kicked out a 62-year-old grandmother with multiple sclerosis, because they were worried her service dog would get service dog cooties all over the dresses.

The company has since indirectly apologized to the woman via a letter to the news station that broke the story (after first refusing to comment on the allegation at all), In the letter, the store’s owner assures the public that they welcome service animals “when they are leashed and well controlled so that our pretty wedding dresses and accessories are kept in good condition for customers.” There’s no mention of whether the woman’s dog was leashed or not, although the idea of a rambunctious service dog who doesn’t mind is just funny.

What the hell? No one even BUYS the sample dresses. When you order a dress, it takes months to even get it in. I ordered mine on February 14th and it won’t be here for another 3 weeks! Second, it would be a very odd day if I didn’t see a dog at Nordstroms’ or well, most stores in Seattle. It’s a dog, not a 2 year old. Dogs can be calm. Anyway, Isis Bridal sucks.

→ No CommentsTags: Activism

There.

May 15th, 2009 · 2 Comments

I did it. I gave myself a shot. Of course, now I am itching and hurting so bad that I won’t be able to sleep on my right side tonight.

All I gotta say is…. my MRI better be perfect for all this freakin itching. It’s next week. I think I should get a party if it’s the same as last year. If it’s not then I think I should get a party for putting up with all the stupid itching for no reason. Well, I don’t really like parties so maybe no parties. I wouldn’t mind another camera lens though.

Oh, just so I have something positive, here are some pictures I took yesterday at the Aquarium:

→ 2 CommentsTags: Treatment