Planning The Unpredictable

LIVING with Multiple Sclerosis

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Neuropsychology

September 18th, 2009 · No Comments

I had my Neuropsychology test about two weeks ago. It lasted from 830am until about 330 with a lunch and potty break in there. It wasn’t too bad. I actually enjoyed the puzzles and pattern detection stuff. The parts I hated involved was related to word finding and the Stroop Effect. One of the word finding tests was name as many words that start with A in a minute. They also asked for F and P. I failed horribly. It felt like I only got 5 right but it was really 20.

Anyway, the results were interesting. I have an IQ of 125 which is 95% (5 people are smarter than me out of 100 of my age/gender) when it comes to Performance IQ. It was surprised it was this high. I struggled throughout school so color me surprised that it was this high.

On the other end… my word finding was horrible. I was at 2% (98 people are better at it than me). Another area that I sucked at was the Stroop Effect which measures distractions. I was at 50% for this which is ‘normal’ but I know I am having problems with it. Both of these are probably related to the MS.

I am going to get a script to visit a speech therapist to work on methods to help figure this stuff out. Kind of exciting.

→ No CommentsTags: Doctor Visits

Woman with MS wins right to die

July 30th, 2009 · 1 Comment

http://news.bbc.co.uk/2/hi/health/8176713.stm

There is a video of her on the website so be sure to check it out.

“The key to living well with MS is getting the right care and support from the point of diagnosis, including palliative care when it’s needed.”

Well, I completely agree with that.

→ 1 CommentTags: Activism

Health care plan

July 29th, 2009 · 1 Comment

I admit to not being as informed about the health care plan as I should be but I found this interview to be fascinating.

http://www.pbs.org/moyers/journal/07102009/watch2.html

It’s about 25 minutes are so.

In other news… I hope the Seattle folks are surviving the heat. It was 94 degrees inside my condo last night. :(

→ 1 CommentTags: Activism

A wedding present

July 15th, 2009 · 2 Comments

As a wedding present to myself, I skipped my shot the day before and the day of my wedding. I am now an old married hag and loving it. As if getting married wasn’t stressful enough… we are also buying a house. So far so good… though.

In MS news… I have my neurophysiology ALL DAY test September 1st. It is going to be a long day! I can’t wait to report here info when I have it.

Hopefully I’ll be posting more now that one major life change is out of the way. :)

→ 2 CommentsTags: Blog

Words

June 11th, 2009 · 2 Comments

What do you do when people always comment (think its funny!) on your misplaced/slurred/screwed up words?

I am getting tired of some coworkers always commenting on it. Today I made a comment to him about how I had holes in my head and to be nice to me but I have said that before…. I don’t think he connects the two.

→ 2 CommentsTags: Newly Diagnosed

Bad night

June 2nd, 2009 · 5 Comments

Well, I gave myself a shot at about 11:30PM and was in an insane amount of pain until about 2:30AM when I finally fell asleep. I called Shared Solutions at about 2AM and they were completely useless. They just told me how to do injections which I am not sure how that is even remotely useful at this point. None the less… they said they can’t help with anything else and to call my doctor.

Basically, I was having throbbing pain down my leg to my foot. I couldn’t get comfortable at all and my whole hip area was swollen. I haven’t experienced anything like that before. It seriously sucked.

I put some lidocaine on the bump and ice but still no good. I finally overdosed on advil and fell asleep. Today, the bump is red and painful but otherwise not nearly as bad.

Argh! I am so tired today.

Has anyone else had a similar reaction before?

→ 5 CommentsTags: Blog

MS ShmMS – I am going to climb Everest

June 1st, 2009 · No Comments

Just climbing Everest is insane but add in MS? Crazy!!!!

http://www.jsonline.com/features/health/45924582.html

Ten years after doctors presented Lori Schneider with a hellish warning to prepare for life in a wheelchair, she ascended to the place on Earth closest to heaven.

Schneider stepped to the summit of Mount Everest, in sunshine and bitter cold, on Saturday morning, and became the first woman with multiple sclerosis to reach the roof of the world. Standing at 29,035 feet, the 52-year-old adventurer unfurled a banner for World MS Day, and then called her father, in Janesville.

“She said, ‘I’m here Dad, I’m on the summit, I made it,’ ” Neal Schneider recounted. “She was very, very happy, as you can imagine.”

→ No CommentsTags: Activism · Insurance

MRI results

May 28th, 2009 · 1 Comment

Ok so, I wanted the MRI CD/results… because it’s my brain. So, I filled out the little form and asked for it to be sent to me. The said if would be 13 dollars unless it was sent to a doctor then it’s free. WTF??!? I have to pay 13 bucks for MY OWN MRI but it’s free for a doctor? Are you serious?

GEEZ!

Oh, and don’t even get me started on the drama involved in my earring. Yes, I have had probably 6 MRIs with this earring and it’s still a big deal. NEVER has it been a problem even in the 3.0 Telsa. The lady thought my ear was going to fly off. Cool image but no… it’s still attached.

→ 1 CommentTags: MRI

How cool is this?

May 28th, 2009 · 2 Comments

So, I had my MRI on a 3.0 Telsa which is that new powerful MRI dealiebob. I have no idea what this is but it’s freakin cool! Click for the full size image.

pathways0001

→ 2 CommentsTags: MRI

MRI Results!!!!

May 27th, 2009 · 3 Comments

GOOD AND STABLE!!!!

YAY!!!!!!!!!!!!! GO GO COPAXONE GO!

→ 3 CommentsTags: Doctor Visits